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Opiate addiction Support for coping with Opiate addiction and Opiate addiction treatment.

 
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  #1  
Old 03-06-2012, 18:18
neverspeakagain neverspeakagain is offline
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How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hi guys,
I really, desperately hope someone can give me some helpful advice.
I have no idea what else to do, where to turn, I have NO help available to me and really can't take anymore.

I tried to make this as short as I could but I'm really sorry that it's still a pretty long ramble and appreciate sincerely anyone taking the time to read.

I've got several conditions which cause me chronic pain and pain management has always been a huge part of controlling things. Somehow I lasted the first 3 years simply managing on dihydrocodeine which I never really took because it did not help my pain in the slightest. Even after a few months where I would take it consistently I could stop it suddenly and suffer no ill effect.
I also end up in hospital with nasty flare-ups about 6-8 times a year where my pain will be treated with IV morphine, 10mg/4 hours and am able to leave each time taking nothing for pain and be ok.

Each time (I have to travel a very long way) I've been to see my consultant gastroenterologist (and this guy is the best in the country regarding my conditions) he has put me on targinact (extended release oxycodone with naloxone), buprenorphine (temgesic sublingual) - both of which I never took and never once ordered a repeat prescription because I did not want to be on opiates.
So when he then suggested Fentanyl and Oxycodone I just said no outright and chose to bear the pain (though some days it really is impossible to function at all). But then I always had the option of strong opiate analgesia for these occasions.

Rewind 11 months and some other things thrown in made my pain really intolerable. I'd very rapidly built up to 300 - 400mg dihydrocodeine per day with no real benefit and my Doctor started me on Oxycodone IR. From the outset I was on around 350mg/day and a hospitalization had me on IV diamorphine and started me on transdermal fentanyl, 50mcg/hour rising to 100mcg in less than 1 week due to my lack of response.
On discharge I was on a 100mcg fentanyl patch 72 hourly and around 350mg of oxycodone for acute pain.

Unforseen circumstances left me away from home where I had ran out of oxycodone completely and experienced my first real opiate withdrawal - which I honestly thought was going to kill me and completely naively and stupidly led to me doing something really stupid (I really did think I was immune to all opiods at this point and that nothing even "affected" me.. how that stupid, stupid look on things should have cost me my life.

I was suffering severe withdrawal despite having the fentanyl patch on. About 4 days into having had zero oxy, I took an unused patch thinking "if I only expose this for a couple minutes to get some of this into my brain buccally, it is going to put these symptoms at bay".
Those mere two minutes were too much and miraculously I was staying with a friend AND the paramedics were only stationed around the corner and got to me in around 4 minutes of having a respiratory arrest. I don't know how my heart didn't go; I had no pulse, hadn't breathed in about 5 minutes, was completely blue and whatever other stats were taken (oxygen?? I can't remember what my doctor said) but it should have been a fatality.

I owe my every breathing moment to these paramedics. They got right to me with resuscitation equipment and naloxone - which kick started my brain back into starting. I am mentally tortured by this every single day and almost feel guilty for being alive. I was even released from the hospital on my usual opiate regime but from that point on was terrified of fentanyl and felt it was one giant dance with the devil. When I got home I begged for some kind of help to reduce my opiate use. But now I feel that's the biggest mistake I've ever made.

Unfortunately where I live, the help available is of an almost non existant, unacceptable standard. Because of that I found myself "working" with a totally inexperienced bully who demonstrated she doesn't know the first thing about opiates. I was initially cut down to 80mg/oxycodone a day (which was not supposed to be touched.

My concern was the fentanyl.) and forced to reduce the fentanyl every 3 days. Repeatedly I said how ill this was making me, that 3 days was nowhere near enough time for my brain to even adjust to the new dose, never mind ready for ANOTHER cut. I was ignored and told "this is how it's going to be". In permanent inter-dose withdrawal from an absolute joke of a taper.

3 weeks of this was more than enough and the bullying from this nasty woman was beyond out of order. I wasted an hour and a half of my time again raising all my very genuine concerns: mostly the stress on my GI tract: how w/d was exaggerating my symptoms way more than if I didn't already have severe GI problems and terrified of the flare ups this opiate withdrawal caused me.

After being mocked for the final time I said no more and I'd be taking legal action. To which I was laughed at.

A huge problem was my dr had left. So I got a new one and told him everything. He took my sincerity and honesty exactly at face value and suggested 75mcg fentanyl and 120mg oxycodone as maintenance dose which I was more than happy with. By the time I reached the pharmacy with my new scripts this nasty snake of a bully had somehow totally manipulated him and had him call to cancel it.
I couldn't fucking believe it. The fact this ONE stupid, NAIVE incident that I was completely honest and open about because I do not abuse drugs and have never taken anything not prescribed other than the fentanyl incident. But now it's going to go against me the rest of my life and I will be constantly reminded and made to suffer. (The new Dr told me I can look forward to living the rest of my life in debilitating pain now after this bitches interference.)

I was forced right onto nothing. From pretty much 100mcg/hour fentanyl as my brain never stabalised to any reduction and 80mg oxycodone (also cut down from 350) to absolutely nothing. From that I was written up for one 60mg morphine sulphate (ER) then 30mg the next day then NOTHING. The most useless oral medication ever..how does anyone go from taking a pounding of around 3 and a half thousand mg morphine equivalent a day to like... one mg an hour for 2 days only, plus a next to nothing oral bioavailability. I can not get my head around how this is allowed. But it is.

That was 16 whole days ago and I know this is going to sound nuts but it's what brings me here in desperation: I am still in full blown withdrawal. I'm being serious. It has not got any less severe or brutal. And I've had enough and can't do this anymore.

The worst is the chilling aching pain that is right into my bones. It is there all the time and it's ridiculous. That and the constant, daily vomiting and diarrhea (IM anti sickness injections and all the loperamide in the world have NOT helped). And I'm being very serious, inability to sleep and the absolutely horrible restless leg syndrome..which feels like it is affecting my entire body.

I have all the minor things too like constant yawning, sneezing, watering eyes and nose but these are inferior.
And the god damn anxiety.

Now here's why this may be a lost cause. I have NO help. It's like this whole thing is not even up for debate and I should just shut up cos no one will listen if it's about opiates..whenever I've tried going to the drs.
To think there are things out there that help this and I won't even be given them. I don't see how anyone is losing anything by giving me lofexidine and something to help all the anxiety and sleeplessness.

I have NO energy. I can't even walk for 15 minutes without feeling like I'll faint. I'm useless right now and this feels like it is never, ever going to end. Is there anything anyone can suggest to help me because I'm honestly at the end of the road and really can't take this suffering and sickness any longer.
I thought with both drugs, the w/d would be very abrupt and severe but short as the oxy has such a quick half life, and the fentanyl relatively short at 17 hours. 16 days it has been. What in the hell is going on .. it's not even like I was on these for very long.

I thank anyone that took the time to read all of that and if anyone has any words of encouragement they are very much appreciated.

Oh I should also mention I am on Gabapentin which before these opiates controlled my nerve pain well. 900mg doses right now still leave every single cm of my body shooting in pain.
And I've been on clonazepam for 5 years (unfortunately alprazolam is unavailable on our nhs) so all anxiolytic and sedative effect of benzos is long long gone for me.

Thanks again

neverspeakagain added 31 Minutes and 18 Seconds later...

edit: sorry for the typo regarding daily morphine equivalent, don't know where I pulled that from. It should say 24 hour average of 1000mg.

Last edited by Smeg; 12-09-2013 at 15:26. Reason: Paragraphing and line-spacing for ease of reading.
  #2  
Old 04-06-2012, 10:30
Oblomova Oblomova is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hello nsa, I read your post (all of it!) 13 hours ago, and had no time then to reply. Look, you're in an awful situation and it's difficult for me to think of any "helpful advice" that could ease your discomfort. The sleeplessness and all-over restlessness I know well, though not at the oxy levels you describe and certainly not from fentanyl.

I can't do anything but offer my deep sympathies for your quandary - stuck with the bitch - and your immediate physical distress. Sixteen days of withdrawal with full-blown effects sounds very long, going by the half-life times you quote. Is underlying illness affecting your response?

In particular, I remember the long-lasting feeling of not being able to lie still to rest, but too exhausted and mindless to do anything that might distract the mind from the unbearableness of the feeling. If the inability to lie down because of restlessness is something that is affecting you, the following idea might help just a tad... if you also have an exercise ball (you know, one of those silicone (?) inflatable balls about 60 cm in diameter). I have found that lying down with legs up on the ball actually allows the body a bit of rest whilst the legs can easily move back and forth - enough to relieve the restless sensation quite a lot, while the motion continues. Put cushions or other object on the floor, or use a wall or corner to stop the ball rolling further than you want. I also get the sensation in my arms - lying there and throwing the ball up a metre or so relieves the arms. Also it's in my back - lying on the ball front-down and moving arms and legs around relieves the back restlessness, somewhat. Of course I know that relief disappears when the movement stops...

What would be you preference from here? Would you stay away from fentanyl?

I can't tell from your post whether you still have access to the gastro consultant? Could he help? Perhaps you could contact him by phone? Can you tell us how the bitch has authority over another doctor's prescribing? - I don't understand this. Did she notify of "abuse"?

Good luck there, neverspeakagin, and I think that soon you will find the unbearableness starts to slowly diminish. Do you have any support? Distraction is probably good. You did a remarkable job in producing your IP whilst feeling like that, too, congratulations!

Remember, drink lots of water and try to eat nutritiously to give your body a chance to repair whilst you're going through this. More than that, well all I can say is that I'm thinking of you.

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Excellent advice. A truly heartfelt and informative reply.
  #3  
Old 04-06-2012, 23:56
neverspeakagain neverspeakagain is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hi there and thank you so so much for taking time to reply. I sincerely appreciate it ..even if just encouraging words from people who know what this feels like helps me ..because nobody gets this. So I know I know I've come to the right place.

Your question how this "bitch" did all this ..I wish I knew. How a top consultants word gets ignored over a bully of a nurse who knows NOTHING about this but that's the best we're offered where I live.

Today I had to see the dr and said "I've come so far with this MYSELF that I am not going to sit here and say I need opiates. Because I am not a drug abuser like you are treating me ..like scum .. but this is day 17 and as you can see clearly, I'm still I FULL BLOWN withdrawal ..no human being should ever have to.suffer this ..and as soon as I said.I needed something to.help I got the "no no no sorry" from gom before I.could.even say the words lofexidine or lyrics. what in the hell???

thanks for your suggestion ..unfortunately I don't have anything and am too weak to go.sweat in the .. nevermore the gym. every single time I sit or lay down every limb feels like it wants to jump off my body and I can't stay.still or lay in the same position for.even a minute. I've seriously had enough and can't take.any more.

feels like it would never ever end.

Last edited by Smeg; 12-09-2013 at 15:33. Reason: Tidy up.
  #4  
Old 05-06-2012, 00:31
textosteron textosteron is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

All this sounds pretty terrible and i'm very sorry i cannot help you with any useful advice, except maybe this.

There is one thing that comes to my mind. Alright, so no one believes you and thats it. If i got this straight, seems like there isn't anything you could do to correct their opinion and start believing you.

If this is so, what stops you from start playing their game?

Fact is - you are addicted to opiates and you need help. Whether you are addicted to drugs because of "legitimate" reasons such as being in pain, or being addicted to drugs because of pleasure is not that important anymore.
So, what does someone addicted to opiates do in the UK when he needs help? Can't you go somewhere and ask for being put on methadone maintenance or something? I am sure addiction specialists will have your previous medications use in mind and will be able to cover your needs with the appropriate dose of whatever they have over there.

I mean, you're in pain and you do have a good reason to do this, fuck pride and fuck labels, if this is what was stopping you do this until now. You say you're in pain and you need help. At least you live in an normal country with free medical services, there's nothing stopping you use them you know.

And please don't get me wrong on this, i am off course not calling you a liar or anything, i simply don't understand what's stopping you from doing whatever possible to ease this thing you're in. Didn't you even consider this option?

Anyway, whatever you choose to do, i really wish you the best of luck!
  #5  
Old 05-06-2012, 02:03
neverspeakagain neverspeakagain is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hi guys, I'm real sorry for the mess up of the last post ..my laptop broke so I'm using my phone and it's auto correct spells everything wrong. mods feel free to cleat up my last post and hope you guys understood it.

thanks for your reply. hope this makes some sense and clears things up without me revealing too much. All I can say is. that I am in the most remote path of the uk where our National Health Service is a joke and a "postcode lottery". it's not even possible to drive to a city. there aren't even any specialists here. my gastroenterologist and consultants are in london which takes me an entire day and two.flights just to get there. pride isn't even an issue or option ..I am as straight up as it gets .. I hope that makes my situation a but clearer?

so the first.thing that I , MYSELF asked for was a 12.step program ..nop, no such thing here. Next thing I ask for is methadone or buprenorphine (subutex) replacement and told "no, these are horrible drugs". Jesus. so, also there isn't much choice with drs where I am ..and only one (useless) hospital.

I just can't believe this. I'm not even allowed mentioning meds ..I just get a "NO NO SORRY NO" ...not even allowed dihydrocodeine..this is insane. I have a very high pain threshold and was curled in a ball unable to straighten my body screaming and crying in uncontrollable abdominal pain all night long convinced I was gonna end in the ER.

I just can't do this shit anymore. Id also like to note that I buprenorphine from when I was prescribed it and in the uk it is sublingual temgesic and in doses like 0.2mg ..so I don't really know about all these 8 to 32mg.subutex I read about ..sounds crazy.

but it might be useful info for some of you to say that when I was far from opiate naive (on the dihydrocodeine before the crazy doses of oxy and fentanyl) that a 0.2 bupe would make me feel like shit ..and 0.6mg had me vomiting like mad and reacting as if I we're naive. Well...few days ago day 14 into this withdrawal, thinking that logically .. I should have become significantly less tolerant because the oxycodone.and fentanyl should be the hell out..my.system. I took 0.8m buprenorphine thinking this HAS to give some god damn relief. it's been 2 weeks since I had any opiate and the dose is nowhere near that to have a μ opiod antagonist effect. so it has to give me SOME relief, right??? ...well no. it did not even touch the shakes ..never mind.anything else. it did.lc absolutely nothing.

I'm so lost. I also have lots of tramadol which to me is the most useless medicine in the world.. may as well.be a placebo. for not even touch on my pain, makes me wake with a sore head and I really don't want an SSRI discontinuation syndrome to boot. fuck. I hope that makes things clearer .please feel free to ask anything that's still not clear. even if people are at a loss of.being able to help, even words of encouragement from people who.KNOW what this is all about.

much love
-nsa

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For the bravery of being able to reach out for help here, and express yourself with such dignity.
  #6  
Old 08-06-2012, 19:17
Tigey Tigey is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

hey hon,

are you willing to talk in detail about your medical conditions and current regimen? sounds like you could get clonidine or catapres from a local gp. opiate withdrawal eventually gets easier, and will at least lower your tolerance, but I'm not sure the bupe is a good idea at the moment. Please also list what drugs you've got prescriptions around for. Seems like your best course of attack is letter writing to area health services, expressing your shock at failure of care, failure of handover and failure to provide medications in line with previous specialist-prescribed regimens. I've had a couple of sleeping pills so I'm gonna conk out now, but please update us as you're able.

Tigey
  #7  
Old 22-07-2012, 23:56
neverspeakagain neverspeakagain is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hey, thanks for your replies and I wanted to sincerely apologize for my absence. I've had no working computer and my phone would mess up anytime I tried to make a post. But I would read through this forum when my mind would allow it and want to thank this place and all you guys because I can hand on heart say this place has been the only support I've had (except from my amazing friends but I'm sure you guys kniow what I mean when I say it's not the same thing when people don't fully get it or understand and that's where this place helped me massively)

So it's been ...a few months? Is it normal to have physical symptoms lasting that long? When I wrote that post it was 3 weeks in and I was still in full blown physical withdrawal.

The restless legs (more like restless fucking body) was the last to calm down and then the god damn insomnia. It's still lingering. But something I never thought (yet kept fighting) happened. Last week I slept properly for 2 consecutive nights. I didn't believe it. And then I realized I was somewhat functioning. I felt almost motivated and inspired again and NOT BORED..actually WANTING to do things and more importantly, feeling able to.
I knew after a few days what this meant. And I don't think I've ever felt happier in my life. Everybody noticed it outright too and commented on the huge change. Now while I'm still not out of the woods, this is a world away from what that bullshit withdrawal did to me.

My biggest fear through this all (apart from the constant fear of dying) was that my brain took such an absolute pounding from these insane doses, that I didn't believe it could ever fully recover. Is that in any way a possibility that any of you know of?? Can such a battering to the mu opiod receptors prevent ever having a 100% recovery back to pre-opiates?? Now as soon as I felt these feelings I was absolutely overwhelmed as I knew that finally (really .. MONTHS later?) my brain was beginning to work by itself at producing neurotransmitters. Now I'm not dead with fatigue 24/7 I'm taking advantage as much as I can in trying to get the endorphins going but I still don't feel up to the gym just yet.

I don't want to get too ahead of myself in case something absolutely shit happens .. but I mean I don't think I'm imagining that I'm on the road to recovery?

As absolutely horrendous the physical torture of all this was, to me there is no question that the real obstacle is the fucking mental torture. And it lasts. and lasts. and lingers. The boredom. I have never been so bored in all my damn life and it would be so consuming I felt I couldn't even listen to music. No energy, no desire, no motivation. It's like you're a zombie. Your brain won't work. You can't think you can't do anything but at the same time you'd give anything to stop being so bloody bored to death.

This is something I can safely say I will never, ever let myself suffer through again. And the way I was (mis)treated is absolutely shocking. Disgusting. I have no idea how I kept fighting through this. None whatsoever. I think the reason I'm still going is because I feel the worst is over. But this whole thing really was near impossible.

I want to thank everyone on here again, for reading your own accounts, words, advice was invaluable to keeping me fighting this and determined that one day it would end. This would be a different story now though as the same doctors were going to stop my clonazepam, which again, I'm on for a reason. 5 years now. Just STOP it. (while I was still going through a hellish opiate withdrawal!!) I swear to fuck I'd have moved away some proper cuz people just don't treat other humans like this. Couple years ago when I had no idea what a benzo w/.d was i let myself go into one while waiting for my prescription when I was in another country. I didn't want to have to pay hundreds to see a dr just to get some when mine was in the mail. That ended up costing me a lot more and almost my life, with an emergency rush to hospital from near fatal benzo withdrawal effects. So as much a shitstorm I made about this, I know there is worse to be had. And that's just outright scary as shit because it's not like this was anything less than near impossible.

Anyway thanks again
  #8  
Old 23-07-2012, 00:57
Fentiful Fentiful is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Never,

I was on very similar doses that you were on. I just wanted to let you know that yes, your brain will function normally again. I'm glad to hear you're doing much better, hope it continues to and keep us updated.
  #9  
Old 23-07-2012, 01:29
Smeg Smeg is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Tigey more than hinted at making a formal complaint regarding how you have been treated. Have you done this?
If you haven't it really needs to be. Flagging up this disgraceful behaviour from "professionals", and alerting the relevant authorties. This would be a service both to yourself, and to others who may be affected by this fucking awful scenario, nsa.
I cannot emphasise enough that if you make a formal complaint that it could make a significant difference. I'm wondering just how many times this fiasco has been replicated where you are in the UK.

Okay that's my bit over with. If you need any advice on how to properly complain, then send me a DM. I will try to help as much as I can. You can also use your previous posts in this thread as reference points. There's dates and times, but just remember to be assertive rather than getting really angry and using any sort of language that may be deemed abusive by whom you contact. I'm only saying this because you were rightfully enraged by what has been perpetrated on you when you were more vulnerable last month. Perhaps this doesn't need saying, but I thought to mention it.

All the very best to you, nsa.

Last edited by Smeg; 23-07-2012 at 02:22. Reason: Additional
  #10  
Old 23-07-2012, 04:15
neverspeakagain neverspeakagain is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Thank you so much for taking the time to offer me that advice and you are correct. I'll let you know what's going on regarding that - I was going to address it in my original post but then didn't know what the rules on discussing such things were.

And Tigey love - I meant to respond to you too (my phone wouldn't let me but I got my laptop fixed now). Thanks for your reply too. I really appreciate it.

And just to let you know I'm more than happy to talk about anything you want to know that might help. Medical conditions, medication prescriptions, the joke with the GPs and anything else. Please feel free and anyone feel free to PM me.

Smeg: this is where it's a nightmare. Obviously the psychological clutch and mental destruction of the withdrawal left me pretty useless. But now I will do anything, I feel I have some mental clarity, determination and motivation again - this NEEDS to be fought. As hard as it is and how it's like a domino effect with the NHS as soon as you complain - they all gang up. But it all seems so so bent. This same woman who I asked back then to stay away from me, that it was in her best interest not to make snide sarcastic disgusting remarks at me every time she saw me. (Unfortunately she works in the same practice building as the doctors). Well ..2 days ago she strikes again. It's so disgusting.

And I know what you're saying. People are commenting on how I seem back to normal and really "chilled" and in this frame of mind I won't tend to lash out or do anything irrational or act aggressive that will go against me right away. So I need to be clever and strong. These people just gang up and always get away with lies and it's so so offputting but if not for me, then for all the other people that I KNOW this bitch has done the same thing to and gotten away with.

I submitted an original complaint to the local health board when she was still in all my records sneaking around like a dirty snake manipulating doctors against me (because after the last manipulating bullying I was going to subject myself to, I (calmly) said what an absolute disgrace this whole thing was, what was the point if I'm talking to a brick wall and there is no compromise or listening or understanding ANYWHERE, all the snide disgusting bullying, that that is IT and I will take the situation all the way to the NMC (what does someone who's title is "mental health NURSE" have ANY control over opiate fuckin withdrawal?? I was the one doing all the educating. EG: she didn't even know the equivalents of the fentanyl or oxycodone to morphine salts, half lifes, NOTHING. I can't believe that is all we are offered here and can't believe it is allowed.

I knew exactly what this was gonna come back saying. The investigation report - it made me so sick I got sick from panic and stress. Nothing but LIES and crap and ..so disgusting man. Basically along the lines of "sorry it is very difficult when it is one persons word against another's and there's no evidence ... so she says BLA BLA BLA (LIES LIES LIES) and as there's no proof then sorry .....

It is so sickening and corrupt and there is so so much more that needs to be brought up regarding this corrupt, bent mess. And I just have no idea how to even go about it, how I'll get taken seriously, how to do it, how to word and phrase anything. It's driving me mad but it absolutely has to be done.

Again, thank you so much and I sincerely appreciate your willingness to give relevant advice. Please feel free to PM me about any of it , regarding also why it is such a postcode lottery bullshit mess because of where in the UK I am located.

Can't stress it enough, thanks a million guys. And anyone reading this with anything to add; please do. Regarding this horrible PAWS, the whole deal in general, dealing with the maltreatment ...

love n respect,
nsa
  #11  
Old 23-07-2012, 08:13
TooManyDrugs TooManyDrugs is offline
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140 mg daily Methadone,75 mcg Fentanyl, Lyrica (as much as I could get)

I spent the month of June preparing my mind for a cold turkey 7/1 date. I am on day 24, and while the worst symptoms have passed, I can not get my legs to feel right, sleeping is still a problem, and I have no energy level. It was drugs or my marriage, so I went off everything but methadone on 6/15. I took my normal dose until 6/28, and I went from 140mg to 20mg on the 28, 10mg on the 29, 5 of 6/30, and I have been clean since.

I count day one as the day I went to 20mg, my worst days were day 4 thru 8. There are things you can do to help, but the most important is preparing your mind. Mind over body does work. Pick a day and do it!!! I am not a 12 stepper, I think it gives too much freedom. Your not gonna quit unless you want or have to. AND STAY OFF YOU TUBE FOR ADVICE!!!

First, remember, everything that is going to happen through withdrawal is your own fault. I have a very ill wife who had everything I needed to maintain my habit in the house. I wasted 6 years, and I am inches from her walking out on me. She tried everything over the past years to get me to stop, but I also got into her safe, and took her meds, then I told her she must have taken more than she thought. About 3 years ago, it got real bad, and I keep leaving her short on her meds for up to a week at the end of each month. My habit was making my wife withdrawal for 7-10 days every month. If I have to do that every month I would have to kill myself.

Any WHAT YOU CAN DO. Your body has to adjust to being drug free, so after the worst of it. I didnt eat anything the first 8 days. I drank boost. After I knew I would puke, I starting eating. On day 9, I had one meal. On day 10, the headaches came, but my body would not let me swallow. The solution to this problem is bananas. They will help you get the pills down. I started overloading my system with Magnesum and Potassium vitamins. They helped once i built of the levels. The hardest thing I had to deal with after day 10 was energy level, diarrhea, lack of sleep. I am 27 days into this now, I am still not normal. All those stories I heard about how painful it would be to wathdrawal from Methadone / Fentanyl were NOT true. It is not pleasant, but I was never screaming in pain like I was told by the clinic and others who had supposedly tried to do this.

When you are really to get up and try to start doing things again, over load your system with a good B vitamin complex. 1000% of B1,B6,B12. And take as much vitamin C as possible. I have been taken 1000% of daily recommended totals.

Today was the worst day I have had since day 9, but yesterday was a good day. Remember you system needs to get ride of everything which will take 30 - 45 days.

I will post more later, please ask. I will help anyone I can.
  #12  
Old 23-07-2012, 13:50
neverspeakagain neverspeakagain is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Hi and thanks for your reply.
I'm sorry to hear what you are going through and hope everything works out. Well done on having the strength to straighten your life out and do this.

I know my posts are pretty long - sorry. But I did it. I fucking did it and have no clue how. My point was I was refused help everywhere I turned because the health service here is beyond a joke. So from 100m/hour fentanyl and 350mg/day IR Oxycodone I was forced to pretty much cold turkey and every day it made me feel like I'd die and never come out the other end. But months later I'm finally starting to feel better from it all.

Thanks for your support and I hope things are going better for you. Again, well done mate.
  #13  
Old 23-07-2012, 14:30
DocBrock DocBrock is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Dear neverspeakagain,

I feel utterly fucked over by my local mental health team. Because I am an ex addict, they treat me with less respect than something which can be inverted and used as an impromptu pencil eraser. I felt the upper echelons wanted to dismiss me, sedate me, keep me quiet. I felt they were prejudiced against me and were withholding treatment. When I raised this point, the stress of defending myself and presenting my case that they had failed in their duties sent me toward yet another nervous breakdown.

I refused to relapse and fought back. I lost at first, a loss that meant I did break down again recently.

My nurse retired last week ( BOO! ). When I rang to ask her what was happening and why nothing was happening, she checked my records and informed me I'd been disengaged. She was disgusted at the way I'd been treated and came to see me on Friday to explain what happened, corporate style.

I had a 'phone call this morning from my ex-nurse. She explained to me person style and wholly candidly now she's retired. I caused trouble and ruffled feathers. Someone went into my records and altered them. Instead of returning to the office and chilling out for the afternoon, she has created a shit storm of monumental proportions and the consultant responsible is to face a disciplinary hearing. They'll probably 'retire' him, but I don't care. That is one less prick I have to deal with.

And herein lies the crunch. No matter what now, I will always be considered a pariah. Raise too much fuss within the cliques of your local health authority at your peril.
  #14  
Old 01-08-2012, 18:43
Aberdonian Aberdonian is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

this is the first time i have seen your thread, im really disgusted the way you were treated the docs put you on that medication it is their duty of care to taper you as omfortably as you can manage, i tried ct on 80mg oxy and 75mcg fent and that was hellishly worse than methadone ct, im an addict but my doctor says as im a cpp they cant deny me my pain medication so im still on 120mg oxycontin and 80mg oxynorm , my doc is leaving soon tho so im making sure i get my second choice of doctor ,i would be taking the docs to court, even prisoners in jail who were denied their methadne fr a couple of days due to a screw up sued the prison service for un necessary suffering and averaged 3500 quid each in payouts, id be going for that if i was u ! all the best,A
  #15  
Old 01-08-2012, 19:28
Fentiful Fentiful is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Neverspeak,

I have a question for you, and also wanted to congratulate you on what I know personally can be a hellish ordeal. The question is, since coming off of all that have you noticed and of the following symptoms.

One sided muscle and nerve pain. For example, random nerve pains throughout your left or right side along with intense muscle spasms in your neck and back on that side only. These pains tend to come in severe episodes lasting 2-3 days, and are preceded by migraine type headaches and or headache only on that side.

To be clear, I'm not talking about the initial withdrawal pain, I'm talking about noticing these symptoms when all of the other withdrawal symptoms have cleared and it really being noticeably a month or more later and lasting for several months.

The reason I'm asking is because this happened to me after discontinuing a similar amount of the same medicines you were on. However I was also on other medications at the time of. I have questioned my doctor, pharmacist regarding, and researched high and low, and haven't found anyone with these same symptoms related to protracted withdrawal from any of the same medicines I was on. My doctor has chalked it up to a pain syndrome, and for some reason it just doesn't jive with me, due to a lot of reason that I won't go into now. I'm just wondering if anyone else on similar medications has experienced this, so I can perhaps narrow it down.

Thanks in advance, I'm so glad you stuck through it, and I truly hope things have gotten better and continue to do so. If nothing else you can turn this ordeal into increased self worth and testimony to how strong you truly are. Best of luck, M
  #16  
Old 12-09-2013, 14:02
cancersurvivor cancersurvivor is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

Dear neverspeakagain

I’m really sorry to hear you had such appalling treatment from the National Health Service (NHS). Most people get a great service but sometimes it goes badly wrong. We have to fight back when we feel well enough by making formal complaints. Everyone in the UK has a legal right to complain about any NHS service. You sound like you might be thinking about doing this. It's hard work but you can get great help from the NHS Complaints Advocacy Service. Your advocate will help you to write your complaint, go to any meetings with you and generally support you all the way. The service is free, confidential and independent. To find your local advocacy service, just Google “NHS Complaints Advocacy Service” and enter your postcode. That’s what I did and, when I found out what they offer, I wish I had done it months ago.

I have wanted to make a complaint since August 2011. At the time, I didn’t have the physical and mental stamina to do it but I couldn’t let the negligence I experienced from an NHS pain clinic consultant go unchallenged. I have friends who attend the same pain clinic and I know the general standard of care is below that required by the Care Quality Commission.

This week, I finished writing my formal complaint with the support of my NHS Complaints Advocate. I started to draft my complaint in early August 2013. You’re supposed to complain within 12 months but I didn’t get a correct diagnosis until April 2013 so I’m still within the timescale. It took me weeks to write my complaint letter with its detailed appendix. In the end, because I'm going through fentanyl w/d, I got too confused and couldn't finish the letter properly. I knew it didn't have the punch it needed. I contacted my local NHS Complaints Advocacy Service and my Advocate called me the next day. I was so impressed by the excellent help she gave me to make my letter work properly. I sent her a copy of my letter by email so she could comment. Then I made some changes and it was posted. It’s done at last and I’m so glad that my advocate will stay with me throughout the whole process until I get a resolution.

Big hugs. I hope everything goes well for you.
  #17  
Old 21-09-2013, 17:59
Holy hurty Holy hurty is offline
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Re: How long will this suffering last? Fentanyl + Oxycodone withdrawal

I feel for you. I too was tossed to the curb for no good reason. My soon to be x husband had called my doctor and told them that he thought I was abusing my medicine and that it was making me suicidal. Which was a total lie, he was just out to hurt me because I left his miserable ass.

I was on oxycontin for my messed up back for 6 years. The last two years the dosage was 180mg. Daily. I too had very bad withdrawls for 16 days. The barfing and stomach stuff got better around 17 days. But, I am on day 35 and my legs still hurt. Not 100 percent of the time, but half the time. I was in so much pain on day 4 and day 9 that I lost consciousness.

Just like you, I did not want anything to do with the hospital because of fear of my medical record. It is such a fucked up thing to make people suffer this amount of torture. It has been the most painful thing I have ever experienced in my entire life. My view on suffering and pain has changed dramatically from this. It is not morally right, and I wish there was something that could be done to the doctors who put people like us here. I have never abused drugs in my entire life, but my dismissal from the doctors office on my record will follow me for life.

I can tell you that the yawns and stomach stuff will be over soon for you. But the leg hell? I wish I knew. I need to go back to work and there is no way I can start a new job until I feel better.

I did find one thing that gave me some leg relief. Get you iPod and find your favorite loud rock song and blast it through your brain. No soft music. It has to be loud and fast paced. For some unknown reason my legs would stop hurting as much while the loud music was rocking in my brain. If I listened to slow songs it would get worse. Maybe it was just me, but it is worth a try.

Good luck to us
Shame on them!

Holy hurty added 7 Minutes and 4 Seconds later...

I feel for you. I too was tossed to the curb for no good reason. My soon to be x husband had called my doctor and told them that he thought I was abusing my medicine and that it was making me suicidal. Which was a total lie, he was just out to hurt me because I left his miserable ass.

I was on oxycontin for my messed up back for 6 years. The last two years the dosage was 180mg. Daily. I too had very bad withdrawls for 16 days. The barfing and stomach stuff got better around 17 days. But, I am on day 35 and my legs still hurt. Not 100 percent of the time, but half the time. I was in so much pain on day 4 and day 9 that I lost consciousness.

Just like you, I did not want anything to do with the hospital because of fear of my medical record. It is such a fucked up thing to make people suffer this amount of torture. It has been the most painful thing I have ever experienced in my entire life. My view on suffering and pain has changed dramatically from this. It is not morally right, and I wish there was something that could be done to the doctors who put people like us here. I have never abused drugs in my entire life, but my dismissal from the doctors office on my record will follow me for life.

I can tell you that the yawns and stomach stuff will be over soon for you. But the leg hell? I wish I knew. I need to go back to work and there is no way I can start a new job until I feel better.

I did find one thing that gave me some leg relief. Get you iPod and find your favorite loud rock song and blast it through your brain. No soft music. It has to be loud and fast paced. For some unknown reason my legs would stop hurting as much while the loud music was rocking in my brain. If I listened to slow songs it would get worse. Maybe it was just me, but it is worth a try.

Good luck to us
Shame on them!

Last edited by Holy hurty; 21-09-2013 at 17:59. Reason: Automerged Doublepost

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