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  #1  
Old 22-12-2011, 03:43
Emin Emin is offline
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Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Hello. I recently found out I may have psoriatic arthritis or rheumatoid arthritis. My brother is 24, and has a bad unknown autoimmune disease and rheumatoid arthritis and is in constant joint pain. I am only 18 and I recently realized that what I thought was horrible eczema on my ankles is actually psoriasis; it is a horrible itchy mess that has been on me since age eight, a clear indicator of immunity issues. My mother is a Nurse Practitioner and agreed with me after seeing it.

What I really want to discuss is my joint pain and possible solutions. I can take 20 acetaminophen or 10 naproxen and feel no relief, which I know is horrible for you it is just to show that nothing will work. In the past I have gotten 5mg Percocets and 5mg pure oxycodone pills from my GP for my odd and undiagnosed joint pain, and migraines. This being said my GP is very pill happy. The majority of this part of the country is pretty stringent on dispensing opiate medications and I am only soon to be 19 years old. But really I don't need anything stong, I'm not a drug-seeker looking for a 30mg oxycodone a day. That is far more than I need.

I am wondering if anyone has been diagnosed with arthritis on these boards and how they got relief, or if anyone has experience with being prescribed opiates at a younger age. I have an appointment in a few weeks to be properly diagnosed but I am certain at this point that I have immunity problems causing pain. I just don't know how to approach these professionals to get the relief I need to go through my day without being so fatigued, tired, and in pain that I do nothing productive outside of the few classes I'm taking. Thanks.
  #2  
Old 17-07-2012, 05:52
supergirlsx4 supergirlsx4 is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Hello. I'm a 36 yr. old female with diagnosed severe and progressive psoriatic arthritis. My rheumatologist referred to me as the poster child of this autoimmune disease because I had every known symptom. That is very unusual to have them all so this disease can be difficult to diagnose. I started to get psoriasis at about 20 yrs. old. then at 30 the joint pain started symetrically as in both feet, both shoulders, both thumbs and it went from very painful to excruciating in a very short amount of time.It actually got to the point that I could barely walk and forget going down any stairs, i couldn't start my car or button my clothes and open doors. I also took way too much tylenol plus too much ibuprofen that would barely dent my pain. Naproxen also gave me no reprieve. If you trulybelieve you have this disease your only hope is to see a Rheumatologist. They will be able to diagnose you with observation of your symptoms,and blood tests to determine if you are Rh factor negative. There are medications called TNF blockers (Tumor Necrosis factor) also called biologics. You and your rheumatologist will discuss these meds I'm sure if you are diagnosed with either degenerative joint disease. These meds weren't even available 15 years ago so long term effects are unknown and they are very risky to use so the benefits will need to outweigh the risks for your Dr. to even consider prescribing them. These are also injectible meds that you can either do yourself, some can only be injected by your Dr., and some are administered by infusion. They will slow joint degeneration to the point it almost stops, relieve the pain that pills won't help, and give you mobility if it has been impaired. Both of these joint diseases have no cure and need treatment maintained in order to prevent irreparable damage and disfigurement to your body.The sooner you get an appt. with a rheumatologist the better off you will be. A general Dr. or practitioner is not knowledgeable enough to treat this disease and a rheumatologist is a specialist in the field of autoimmune diseases. I wish you luck in finding someone and something to help your ailments and godspeed.



0

supergirlsx4 added 25 Minutes and 40 Seconds later...

Oh and a couple more points, the biologics also will help you with the fatigue and energy level. If you or your rheumatologist think these TNF blockers are too risky for you to take, they are very knowledgable about alternative and more effective treatments available, than a Dr.. I also don't like being doped up with opiates and it would be horrid on your system plus addictive if you take them regularly and long term. I know I already said this but I can't stress to you enough how important it is to see a Rheumatologist rather than a general Dr. about this disease.

Last edited by supergirlsx4; 17-07-2012 at 05:52. Reason: Automerged Doublepost
  #3  
Old 17-07-2012, 16:14
[tanarilla.] [tanarilla.] is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Hi,

I am slightly older than you, but not by much, and I *usually* have no issues with my doctor. Last year I was diagnosed with Osteoarthritis in my knee resulting from a previous injury that is due to Joint Hypermobility Syndrome. So it's not rheumatoid or psoriatic. Apart from my knee, I don't have arhtriris officially diagnosed in any other joints, but I'm quite sure that all my weight bearing joints are affected to some degree.

You are unlikely to be prescribed anything until it's proven that you have some kind of arhtritis. If the damage is bad enough [let's hope it isn't] it can even be seen on an X-ray. Otherwise you will need and MRI or a CAT scan which will give a detailed image of the extent of the condition.

The problem with rheumatoid arthritis is that it's an inflammatory condition, and the pain is a result solely of the inflammation. That in theory, it doesn't warrant the need for opioids as they do absolutely nothing to reduce inflammation.

Psoriatic arthritis is also a type of inflammatory arthtitis. Rhemuatoid and psoriatic can be distinguished by the additional symptoms. Psoriatic often comes [on top of with the symptoms of rheumatoid] with the patient also having skin psoriasis, ridged fingernails and toenails near the affected area, swelling of the ankle, Achilles tendon, and little sausage like swellings on the hands and feet. Unexplained exhaustion and fatigue is a common and very unpleasant symptom of all kinds of arthritis [one I suffer very much from] and opioids tend to make this worse, speaking from experience.

The good news it's that sporiatic arthritis can be treated with much better and effective medication than opioids. There are two types or groups of medicines that are used, [other than NSAIDs] one are immunosuppressants called disease-modifying antirheumatics and the other being biological response modifiers. You can also have steroid injections to the affected joint. It's very likely that you will be put on one of these initially if it turns out you have psoriatic arthirtis.

Other than that, I recommend you go to your doctor as soon as possible because this will take some time...I mean being diagnosed. The sooner it's done, the sooner you can get treatment. I wouldn't go there with the initative to just get pain killers as they won't help you in the long run.
  #4  
Old 18-07-2012, 01:29
supergirlsx4 supergirlsx4 is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Not to be a pest [tanarilla] but there is a very important and huge difference between ostheoarthritis and psoriatic or rheumatoid arthritis. Osteoarthritis is an arthritis that occurs due to aging and wear and tear on the cartilage in joints. It is very painful I am sure since I know joint pain. Psoriatic and Rheumatoid arthritis are autoimmune diseases. Which means that they are caused by a glitch in your immune system that causes your immmune system to turn on itself and begin to attack your body instead of what it is supposed to do(fight of diseases). This is why I cannot express enough that these autoimmune diseases need to be treated by a proffessional who is a specialist in the field of Autoimmune diseases, which is a Rheumatologist. Not a general Doctor. My general Dr.precribed me Naproxyn and plaquenil which my Rheumatologist laughed at. You most likely will need a referral though from your general Dr. because Rheumatologists are bombarded by people with all sorts of arthritis that is caused by aging,injury, or overusing your joints. My Rheumatologist wouldn't see you [tanarilla] for osteoarthritis because it is not an autoimmune condition. So please Emin do some research online and look up what a Rheumatologist is for. These diseases can disfigure and disable you very quickly if they are not treated appropriately by a specialist. Time is of the essence also since these diseases have the possibility of progressing rapidly and is not something to ignore. At your age also you have a lot to lose if any joint becomes permanently damaged. So as someone who lives with autoimmune arthritis and I am educated by personal experience I suggest that you see a Rheumatologist and get treatment started as early as is humanly possible.
  #5  
Old 19-07-2012, 16:22
[tanarilla.] [tanarilla.] is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Quote:
Originally Posted by supergirlsx4 View Post
Not to be a pest [tanarilla] but there is a very important and huge difference between ostheoarthritis and psoriatic or rheumatoid arthritis. Osteoarthritis is an arthritis that occurs due to aging and wear and tear on the cartilage in joints.
When did I say that psoriatic arthritis and osteoarthritis had anything to do with each other? As far as my understanding of the english language goes, I have never written that.

Quote:
Originally Posted by supergirlsx4 View Post
It is very painful I am sure since I know joint pain. Psoriatic and Rheumatoid arthritis are autoimmune diseases. Which means that they are caused by a glitch in your immune system that causes your immmune system to turn on itself and begin to attack your body instead of what it is supposed to do(fight of diseases). This is why I cannot express enough that these autoimmune diseases need to be treated by a proffessional who is a specialist in the field of Autoimmune diseases, which is a Rheumatologist. Not a general Doctor. My general Dr.precribed me Naproxyn and plaquenil which my Rheumatologist laughed at. You most likely will need a referral though from your general Dr. because Rheumatologists are bombarded by people with all sorts of arthritis that is caused by aging,injury, or overusing your joints.
The only thing I said regarding treatment is that Emin needs to have an MRI or CAT scan to determine how far the condition has progressed. This is pretty standard. I never suggested that he only sees his regular doctor and doesn't need to be referred, I said the exact opposite...

Quote:
Originally Posted by supergirlsx4 View Post
My Rheumatologist wouldn't see you [tanarilla] for osteoarthritis because it is not an autoimmune condition. So please Emin do some research online and look up what a Rheumatologist is for. These diseases can disfigure and disable you very quickly if they are not treated appropriately by a specialist. Time is of the essence also since these diseases have the possibility of progressing rapidly and is not something to ignore. At your age also you have a lot to lose if any joint becomes permanently damaged. So as someone who lives with autoimmune arthritis and I am educated by personal experience I suggest that you see a Rheumatologist and get treatment started as early as is humanly possible.
I didn't ask to see your rheumatologist? I know osteoarthritis isn't an autoimmune condition, since I suffer from it... just for the record, *anyone* with joint problems will initially be sent to a rheumatologist. Unless, like in my case, the problem is caused by an injury, in which case you are more likely to be sent to an orthopeadist. Any doctor knows that. I'm sure Emin will be sent to see the right person.

I am not looking for an argument, but I feel that you are discrediting my advice, and as this question is about pain relief and treatment options, and not who's best the specialist to see.
  #6  
Old 19-07-2012, 18:57
mkultra5979 mkultra5979 is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

I also suffer from an autoimmune disease, called ankylosing spondyloarthritis, since I was 25 years old (now 32). I wasted many years visiting the wrong type of doctors... prescribed NSAID's, again and again, especially indomethacin and destroying my stomach. I was such an idiot.
For the last 3 years I am prescribed TNF blocker (injections called Humira, brand name of adalimubab) from my reumatologist, twice a month, and I have been saved from several pain. TNF blockers (Humira, Enbrel, Remicade) are the answer today for these kind of diseases (psoriatic arthritis, rheumatoid arthritis & ankylosing arthritis. I'm not a doctor but I feel very experienced with autoimmune diseases and you just can't manage the pain with opiates or common painkillers... I can't understand how there are doctors that they prescribe painkillers such as codeine or oxycodone. Even NSAID's are useless today.
TNF blockers are the solution for modern reumatology. From the first injection (legs or belly) the pain and other problems from the disease stopped. The bad thing is that they are very expensive drugs and probably I will taking them for the rest of my life - I also have to check my liver often with blood tests and be aware of infections (for example if I have to visit the dentist, I must take antibiotics before). The good thing is that I have public insurance (at least until my country bankrupts, lol).
If you are suffering from any kind of these diseases and since you are so young people, take an MRI, do some specific blood tests, go to a reumatologist, ask him for diagnosis and go on with TNF blockers. And please do not use / misuse painkillers, you're wasting your time.
Take care everybody and good luck.
  #7  
Old 19-07-2012, 21:32
blondemoment blondemoment is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

Tanarilla- for what it's worth I think you gave some really good advice to the OP. An MRI is always a must in situations like this. If it wasn't for MRI's I wouldn't even be alive today
  #8  
Old 27-07-2012, 11:24
blink1989 blink1989 is offline
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Re: Experience with pain from psoriatic arthritis/rheumatoid arthritis?

holy crap, I have psoriatic arthritis too! that's three people on this thread that have this rare condition.

sorry to go off topic

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analgesic, arthritis, narcotic, opiate, opioid, pain control, pain management, rheumatoid, rheumatoid arthritis

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